A Better Life for Livie“Some of the mothers that have had their children treated with the Zolgensma have seen incredible results.”

As heard on The Ray D'Arcy Show

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It’s known as the most expensive drug in the world, costing €2m for a single dose. It’s used to treat a rare genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. It’s called Zolgensma and Karen Vickers told Ray D’Arcy on Wednesday that her 8 month old daughter Livie, who has SMA, needs the drug to ensure her quality …

Additional Needs Clothing for Kids“By that afternoon I was on the phone to their senior management team and they were absolutely 100% on board and they have been ever since.”

As heard on The Ryan Tubridy Show

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Alva Cullen describes her daughter Sorcha as an “absolute whirlwind” and “an utter force to be reckoned with”. 13 year old Sorcha has Down syndrome and one of Alva’s challenges has been getting suitable clothing for her daughter and she wasn’t alone. Alva is part of a Co Meath group called Special Hands Activity Group, which organises activities and events …